Monday, May 6, 2013

How You Can Help

Wondering if there is anything you can do to help a family or individual with cystic fibrosis? Here is a list that can be continually added to of things you can do to help right now:

  • Make a donation to Cystic Fibrosis WA (or the Cystic Fibrosis charity in your country/state)
  • Join or set up your own Great Strides team
  • Create your own fundraiser, with proceeds going towards CFWA (or equivalent)
  • Share details of an upcoming fundraiser on social media so it reaches a wider audience, even if you aren't donating yourself
  • Share pictures, facts, blogs, any information about CF you find on social media and in real life to raise awareness
  • Educate yourself on CF. Find out the facts.
  • Quit smoking, or at very least, confine your smoking to your own property so that others are not forced to smoke along with you
  • Register as an organ donor
  • If you have your own business, donate a percentage to CF research, perhaps during May (which is CF Awareness Month).
  • Learn how to perform physiotherapy (chest percussion) to help out a family by giving them a break now and then
  • Learn how to administer other medications for a young child with CF to give the parents some time off
  • Learn how to fat-match with enzymes and spend some time with a young child with CF
  • If the person you know with CF is admitted to hospital, go and visit them. Bring something for the person with CF to do. If they are young, take over for a few hours to allow the parent to go home for a little while.
  • If you know someone with CF in hospital, visit the family members left at home. Spoil any healthy siblings, who will be missing their brother/sister or perhaps feeling a bit neglected. Prepare a meal. Help hold down the fort for a while.
  • Buy something from the CFWA online gift shop.
  • Volunteer to help your local CF charity in a practical way.
  • Make sure your immunizations are up to date. Needles don't stop in childhood! 
  • Make sure your kids have had all their vaccinations.
  • If you are sick with something contagious, especially something like the flu (or worse), stay home and look after yourself. Don't share the germs!
  • Wash your hands more often.
  • Ask the family how they are going. Listen if they want to talk.
You can also head over to our Facebook page: May is CF Awareness Month so I am posting a CF Awareness picture every day.

If there is anything else you can think of, post it in the comments and I will add it to the list!


  1. Providing us with some meals helped out SO VERY MUCH when my daughter was in the hospital. We then ca e home on IV meds. I was running to work, coming ho e at, unch time, doing her medx, going back to work, then home to do evening meds. Oir friends went to a local deli (who has really good food), and got us stuff: turkey, ham, roast beef, variety of cheeses, buns, 2typex of soups, chips, veggie tray.....we had enuff to eat & pick from for a week! It was great...heated or cold!

    1. I'm so glad that helped you! Such a good idea, getting items from the deli, much easier on everyone I'm sure.


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